Author, Poet, Blogger
Learn more about Alzheimer's
The Alzheimer’s Association
One of the world’s leading voluntary health organizations in Alzheimer’s care, support and research. http://www.alz.org/
The peak body providing support and advocacy for the more than 321,000 Australians living with dementia. http://www.fightdementia.org.au
Alzheimer’s Disease International
The international federation of more than 79 Alzheimer associations. Representing people and nations on all continents, the organization has become a global voice on Dementia.
Alzheimer’s Foundation of America
Provides optimal care and services to individuals confronting dementia, and to their caregivers and families—through member organizations dedicated to improving quality of life.
Alzheimer’s Research Forum
A dynamic on-line scientific community dedicated to understanding Alzheimer’s disease and related disorders. The website reports on the latest scientific findings from basic research to clinical trials, creates and maintains public databases of essential research data and reagents, and produces discussion forums to promote debate, speed the dissemination of new ideas, and break down barriers across the numerous disciplines that can contribute to the global effort to cure Alzheimer’s disease. http://alzforum.org/
A membership organization, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland. http://www.alzheimers.org.uk/
Dementia Advocacy and Support Network
Promotes respect and dignity for persons with dementia, provides a forum for the exchange of information, encourages support mechanisms such as local groups, counseling, and internet linkages, and advocates for services. http://dasninternational.org/
The Mayo Clinic
A nonprofit worldwide leader in medical care, research and education for people from all walks of life. http://www.mayoclinic.com/health/alzheimers-disease/DS00161
(An insightful article on “shadowing” appears at http://www.mayoclinic.com/health/shadowing-and-alzheimers/MY01765).
Israel’s pioneer service provider caring for those plagued by and suffering from Alzheimer’s disease or dementia, along with offering appropriate services to their entire support system.
Provides valuable health information, tools for managing your health, and support to those who seek information. http://www.webmd.com/alzheimers/default.htm
In The Moment
The tools of improv can make us better caregivers! I learned about this website from a radio broadcast called "This American Life, (532: Magic Words)" coincidentally at the same time I was writing my blog about what we lose by stepping into their reality. As Director Karen Stobbe writes: "[When dealing with Alzheimer's] we learn from mistakes. Actually that is how most of the information on this web site was developed, through mistakes, errors and attempts." http://in-themoment.com/
The Shira Pransky Project
Dedicated to the memory of Shira Pransky, this site collects, organizes, and translates information on the Israeli medical system for English speakers. There are wonderful resources listed here for people with Alzheimer's as well as what you can expect from the Israeli National Insurance Institute. A must see if you live in Israel.
Alzheimer's Poetry Project
This website is absolutely wonderfu! And it hit home immediately. When we were in London in the summer of 2013, we saw a production of MacBeth at the Globe Theatre. My youngest was bored to tears but the rest of us found the play engaging. Mom was especially engaged. In fact, she remembered most of the lines in the play from her childhood. The audience sitting around us was annoyed by her antics, but I was secretly excited by her active memory. http://www.alzpoetry.com/
We are stronger together than we are alone. That's the theme that powers this amazing website. It is a showcase of words and wisdom, books and blogs from the people on the front lines. I am proud to be a member of this organization. https://alzauthors.com/
Memory Cafe Directory
Wouldn't it be amazing to go out for coffee with your loved one and not feel anxious about Alzheimer's induced behaviors that may surface? The Memory Cafe Directory is just that, a directory of "cafes" and restaurants that welcome on a weekly or monthly basis all dementia patients and their caregivers. See if there's a place near you. Or create one!